The PTEN Study: Required Documents Download Page

This downloads page has been updated with new forms which will be effective from September 23, 2011 until September 22, 2012. We will not accept any previous versions of these documents.

icon Description of PTEN Study for potential participants


For non-approved outside sites to send to CCF to have a patient consented:
icon PTEN Eligibility Criteria and Clinical Features Checklist, Permission to Contact Form, CCF Release Form, Banking Checklist, Pedigree, and Requested medical records available to you.

For our Spanish speaking patients:
pdf Permission to Contact (Spanish)
pdf CCF Release Form (Spanish)

For IRB-approved outside sites: All required consenting documents will be sent to you individually by our research coordinator. Along with those documents, please complete and send the following:
icon PTEN Eligibility Criteria and Clinical Features Checklist, Banking Checklist.


Please also see the following:
icon Informed Consent Instructions
icon Specimen and Shipping Instructions
icon Material Transfer Agreement